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I saw a documentary once about a man who had that disease, I can't recall its name now. Truly a horrible disease. I hope science can make progress on it in the coming years.

Btw, this article seems to be from 2015.




You're probably thinking of The Boy Whose Skin Fell Off: http://www.channel4.com/programmes/the-boy-whose-skin-fell-o...


Yes, that's the one.

One of a very short list of films that remains with me through life that I think back to every now and then.


Correct. Mods, please add (2015) to the title.


Updated. Thanks, all.




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